Friday, February 29, 2008
Dr. Logsdon Called
So.....This "cutting edge" treatment I'm doing is coming from one of the most highly regarded doctors in the world when it comes to Testicular Cancer. Dr. Logsdon studied at M.D. Anderson at the University of Texas. Dr. Miller studied at Stanford. My consultant that has helped me along the way is a retired Radiologist, former Chief of Radiology, who studied at Harvard.
Together these guys have a TON of experience and they are collaborating on my case. How could I not be positive? I really think it would be ignorant of me to be down in any way. I'm so lucky! Really.
Thursday, February 28, 2008
Radiation
Studies - CRT
33 patients with stage II A/B were treated with the chemotherapy of Single Agent Carboplatin(C) and then Radiation Therapy(RT) . Those 33 were compared to 80 that were treated with RT alone. The 5 year relapse free survival rate (RFS) for the 33 treated with CRT was 96.9%. The 5 year RFS of the 80 treated with RT alone was 80.7%.
Study 2 (Same Medical Group) - 1998 - 2006 UK
26 patients treated with CRT. There was no reported grade 3/4 toxicity. Their 3 year RFS is 100%.
Dr. Logsdon talked with these doctors in person about treating me with this method. The doctors were happy to hear it from what I've been told. Dr. Miller gave me all my options but was leaning towards CRT for sure. CRT it is.
Doctors Office
I'm SO happy and Brandi is as well!
Answers
He gave me my options: full chemo, radiation, or the study that's being done on the combination of both. Dr. Miller thinks the study looks very attractive because we will get the benefits of both without too much of either. So that's what we're going with. Like I said, this study is new with around 100 studied so far. Dr. Miller is printing it out for me and I'll have it in hand soon. I'm excited to be part of something progressive in the study on cancer.
The doctors office has submitted everything to my insurance company and that approval process has taken around 48hours in the past. After approval, I will have an appointment with a nurse to go over the logistics of the chemotherapy and then next week I will receive my single-dose of Chemotherapy, Carboplatin to be specific.
Today
Tuesday, February 26, 2008
Bed Ready?
I hope this isn't a sign that full chemo is lurking it's head around the corner again. Who knows? This cancer bullshit is such a maze. We'll soon see and deal with it as it comes.
Tumor Board
I have dug so deep and I can't find anything on the study from Great Britain that they are considering for me. It must be pretty new. I trust my doctor 100% and I'll do whatever he says no matter what. I'm sure he'll discuss options like all doctors do. The real answer comes when you ask, "What would you do if you were in my shoes?". The answer Dr. Miller gives to that question will be my treatment plan that we start next week.
On to work.
Monday, February 25, 2008
PET Scan Office
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Friday, February 22, 2008
FYI
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Thursday, February 21, 2008
Supplements
Flax Seed Oil - 1000 mg
Cinnamon Extract - 500mg
B-50 Complex
C- 250
Lecithin(from soy)- 1200 mg
Apple Cider Vinegar-240mg
Zinc- 30 mg
Iodine(from kelp)- 210 mcg
Calcium- 600mg
Based on what I've read and my health stats, I think my doctor will be fine with me taking these 9 tablets. I would never take anything without consulting my doctor first. I'll email him tonight.
Wednesday, February 20, 2008
Results
I learned that Dr. Miller and Dr. Logsdon (the Radiation Oncologist) have been collaborating efforts on my behalf. If you we're to meet both these guys, you would think I have a dream team working for me. Up until today I've felt like I had to control this process because I felt like I was juggled around a bit and nobody else was taking charge. I'm stepping back from that line of thinking because Dr. Milller and Dr. Logston have a good handle and genuine interest in my case.
They both agree that they want to find a way around full chemotherapy and that the area is to big to treat with radiation alone. Both doctors have been doing research and talking to other experts on my behalf. They came across a new treatment plan that has been being studied in Great Britain. It involves a little chemo (1 dose for 1/2 an hour total) and radiation treatment. While this study is young, very young, it has been successful close to 85 to 90 percent of the time. Dr. Miller says this looks very attractive to both of them as a treatment plan for me, but wants to dig into it a little deeper.
Before the doctors make a final decision on my treatment, Dr. Miller is bringing all my info to a Tumor Board that he is part of next Thursday morning. I understand that this board is made up of Pathologists, Oncologists, Radiation Oncologists, and radiologists. He will have the actual slides of my tumor, my CT scan, my PET scan, and bloodwork with him. If I understand it correctly, every test that has been done on me will be getting second and third opinions next Thursday. This, to me, is HUGE.
My treatment, whatever it is, will start the week of March 3rd.
Finally, we thought it was cool that somehow the doctors found my Blog. Dr. Miller asked to have a new picture put on here so I'll switch that up when I get home.
That's it for now, my thumbs are getting sore.
.
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......
At least we will finally know my stage and treatment path . I don't think I've ever had anxiety like I have right now.
4 hours 36 minutes and counting.
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Tuesday, February 19, 2008
Lucky Again
I asked Debbie, a very nice lady that schedules for Dr. Miller, if I could be called if anyone cancels before Friday. It just so happened that someone canceled their appointment tomorrow at 2pm. That appointment is now mine. If she doesn't deserve a Starbucks card, I don't know who does!
Tommorow is the day. No matter what the news, the day will end good. Coach Dave of our soccer team gave me tickets to see the Kings play Atlanta tommorow at Arco. I can't wait to see Bibby in a Hawks jersey.
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Friday
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......
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No Results Yet
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Monday, February 18, 2008
Holiday
I'll call them in the morning first thing.
At work, I trained Bob again. We worked on getting new accounts and were successful in two local hotels, so the day ended good.
Tonight we're going to Disney on Ice which will be a great distraction for us all.
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Diet note
Three days ago I started taking a shot of wheatgrass a day. My father inlaw gave me a gift card to GNC as well, so I'll be getting some more supplements soon.
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Friday, February 15, 2008
Scan Done
They said we should have results by Wednesday. I'm sure we will have them before that.
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Capsule
They injected me and I have to wait an hour for my scan.
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Beautiful Day
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Thursday, February 14, 2008
Valentines Day
Then I came home to a heart shaped meatloaf and pink mashed potatoes "Valentines Feast" that Brandi and Hailey planned. Brandi's sister Nicole was over as well.
The finale of the evening was our Bowling Champinship on the Wii.
.....and still champion of the house......Daddy! I won by 6 pins and Hailey came in second with 204.
We are ready for our test tommorow. I have to not eat anything from now until noon tommorow. I'm looking forward to having some clarity next week. There has been so much uncertainty the last seven days. We will find out soon.
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Wednesday, February 13, 2008
P.E.T.
What is Positron Emission Tomography (PET) Scanning
Sample image obtained using a combination of PET and CT imaging technology.
Positron emission tomography, also called PET imaging or a PET scan, is a type of nuclear medicine imaging.
Nuclear medicine is a subspecialty within the field of radiology that uses very small amounts of radioactive material to diagnose or treat disease and other abnormalities within the body.
Nuclear medicine imaging procedures are noninvasive and usually painless medical tests that help physicians diagnose medical conditions. These imaging scans use radioactive materials called a radiopharmaceutical or radiotracer.
Depending on the type of nuclear medicine exam you are undergoing, the radiotracer is injected into a vein, swallowed by mouth or inhaled as a gas and eventually collects in the area of your body being examined, where it gives off energy in the form of gamma rays. This energy is detected by a device called a gamma camera, a (positron emission tomography) PET scanner and/or probe. These devices work together with a computer to measure the amount of radiotracer absorbed by your body and to produce special pictures offering details on both the structure and function of organs and other internal body parts.
In some centers, nuclear medicine images can be superimposed with computed tomography (CT) or magnetic resonance imaging (MRI) to produce special views, a practice known as image fusion or co-registration. These views allow the information from two different studies to be correlated and interpreted on one image, leading to more precise information and accurate diagnoses.
A PET scan measures important body functions, such as blood flow, oxygen use, and sugar (glucose) metabolism, to help doctors evaluate how well organs and tissues are functioning.
Tuesday, February 12, 2008
Staging
Everything I knew before is null and void. I haven't been staged yet and my treatment path is unknown.
My goal is to get my PET scan done before the end of the day Friday.
I've been counting out going on a company trip to Florida in early March. I just might be able to go. I know, I need to not get my hopes too high, but its possible that this will all be over sooner than later. If it's not than I'm informed and prepared as anyone can be.
My Appointment
He has scheduled a PET scan for me. This is a scan that will tell us what that thing in my lung is and if those suspicious lymph nodes are indeed cancerous. I will get my PET scan date by tommorow, all offices were closed so I couldn't get it today. I am also being sent in for bloodwork tommorow.
My fingers are crossed and so are my toes, legs, and arms.
Monday, February 11, 2008
Appointment Scheduled
Thanks for your help Camron and Alicia!
Sunday, February 10, 2008
All Good
We're going to the gym for the 4th time this week now. Its such a nice day outside today.
Kristy Gets a Tattoo
Irritated
Saturday, February 9, 2008
Dr. Robert Miller
Robert S. Miller, M.D.
Specialties:
Hematology, American Board of Internal Medicine - Subspecialty in Hematology
Hospital affiliation:
Sutter Medical Center, Sacramento
Education/training:
Medical education:
Professional interests:
Genitourinary malignancies, computers and internet medicine
Community activities:
American College of Physicians; Board of Directors, American Society of Clinical Oncology; American Academy of Hospice & HIV Medicine; Board Member, Association of Northern California Oncologists
Personal interests:
Music (piano and voice) and computers
Firing Dr. Quadro
He also said I need to demand an appointment with Dr. Brennan Monday.
He also told me I should be pissed about the Radiation Therapist referring me to the Oncologist. That was the job of the Urologist.
My outside source was yelling , he was so upset.
Calling Dr. Brennans office first thing Monday morning.
This sucks.
Friday, February 8, 2008
Red Flag
I liked him a lot and am about 95 percent on staying with him.
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Consultation
My chemotherapy starts on Feb. 25th at 8am. I will be admitted to the hospital for 5 days. They want me to be inpatient the first treatment so they can be sure there's no reactions from the drugs. He did say I could bring my Xbox and work laptop. I'm only staying there as a precaution. I'll have my work to keep me busy during the day and I have bought a ton of new reading materials for at night. Its going to be fine.
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At the Appointment
I was suprised to see the treatment area. As you can see it's a room full of recliners. I wonder if I can bring my Xbox?
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LAF Summit 2008
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Thursday, February 7, 2008
Dr. Quadro - My Chemotherapy Oncologist
Robert E Quadro, M.D.
Specialty:
Hematology/Oncology
Sub-Specialties:
Internal Medicine
Practice Information
Address:
3160 Folsom BlvdSacramento, CA 95816-5219
Phone:
(916) 733-3333
Professional Information
Education:
University of California, Irvine; 1978
Internships:
UC Davis Medical Center; 1979
Fellowship:
University of California, Davis; 1984
Languages:
English, Spanish
Affiliations:
Mercy General Hospital - Sacramento; Mercy San Juan Hospital - Carmichael
Surgery Follow Up Appt.
Brandi and I are anxious for our appointment in the morning. We want to start my treatment ASAP.
I was reading Sacramento Magazine today and noticed my Chemotherapy Oncololgist was named in their Top Doc's cover story. I will post his Bio when I have time.
All and all I feel great today. So wierd to me that I could be considered sick.
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Wednesday, February 6, 2008
Chemo Consultation Appointment Scheduled
I finally received a Chemo consult appointment. March 5th.
Yeah Right!
I called them back and asked them how to get in touch with Sutter because I wasn't waiting that long. Then on my way home from my last meeting today I called Dr. Brennans, Dr.Khan's(my family Dr.) , and Dr. Longstons office. In each case I talked to the Dr's assistant. I explained I needed to be seen sooner.
At 4pm I received a call saying that I have an appointment on the books this Friday at 11:00 am.
Note to the next guy:
Do not accept the first appointment given. It can be made sooner. Follow up twice a day, everyday until you get what you want. Be prepared to take your business somewhere else if your not happy. Be prepared with detailed info of the office your threatening to leave them for. Do not waste your time trying to contact your doctor. Trust me. Call their assistants everytime. These assistants are so slammed that they will help you get what you want through to your doctor or do something themselves. Make jokes with them. Be friends with each and every one of them.
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Weight
Whenever I do something I always research it to no end. So last night I got knee deep in researching Chemotherapy. It looks like I need to start gaining weight instead of losing it. What a crock! If its not one thing, its another.
What are you going to do though, you know? I think I'm going to have a cheeseburger for lunch today. :)
Tuesday, February 5, 2008
Real
I feel so sad that my kids will see me lose my hair. I guess its time to start looking for some cool hats.
I was a little bummed today but I'm over it. Any good cancer story needs a little chemotherapy, right? We will get through this and when its all said and done, we will be stronger than before.
This story WILL have a happy ending.
Radiation Appointment
Monday, February 4, 2008
My Favorite Picture
My Dr.'s
Dr. Longsdon - My Radiation Oncologist
Dr. Brennan- My Urologist
Department:
Urology
Locations:
Downtown
3160 Folsom BoulevardSacramento, CA 95816
Phone: (916) 733 - 3333
School and graduation year:
Mount Sinai Medical School – New York, NY, 1983
Internship:
Boston University Medical Center – Boston, MA, 1983-85
Residency:
Junior Surgical Residency, Boston University Medical Center – Boston, MA, 1983-85; Urology Residency, Boston University Medical Center, 1985-89
Board certification:
Urology
Additional languages:
Spanish, German, French, Italian
Personal interests and hobbies:
Hiking, camping, swimming, photography and fishing
100%
Event
He let me know of an event in San Francisco next Wednesday night from 7-9pm. It's a public meeting led by a panel of professionals speaking about Prostate, Kidney, Bladder, and Testicular cancers.
I registered and will be there unless Radiation Therapy prevents it, time wise.
Thank You Cameron.
http://www.ascofoundation.org/foundation/Events
Radiation Appointment
I changed my follow up surgery appointment with Dr. Brennan to Wed at 2:15pm since I will not be able to make the original time.
Normal Week
Today I need to follow up with the Radiation office to get my appointment scheduled. Tuesday I have my follow up surgery appointment at 10:30 am with Dr. Brennan.
Other than those two objectives I am planning to have a normal week. I feel great.
Sunday, February 3, 2008
....
No pain at all. The last time I took pain medicine was Tuesday night.
Gym
Super Bowl is like a holiday to me. I rank it between Christmas and my birthday. I don't really care who wins this year but figure the Patriots will win by 28.
Saturday, February 2, 2008
2nd Opinion
So I guess the net net is that I have two more little spots to deal with. Everyone seems confident that Radiation Therapy will be successful.
It could be so much worse. If it were a non-seminoma I would be having to go through the same surgery as my friends son. I could have no insurance. I could have had to miss a bunch of work. I could have had it on my spine. I could be going through all this alone. Lucky for me, none of these things are the case, and I am a very fortunate young man.
Two thumbs up!
Friday, February 1, 2008
Hailey's Report Card
Reading A
Writing B
Mathmatics A
Spelling. A
Science A
History Social Science A
Nice job Hailey!!!! What a good day.
Dr. Brennan Call
The CD with all the pics and Radiology reports will be to my unnamed third party tommorow. I just haven't asked this person permission to use their name on here. This person is a recently retired Chief of Radiology with an education from Harvard.
I can't wait for this weekend! Its going to be cool to watch history when Tom Brady does what he does this Sunday. Also, looking forward to USA vs. Mexico (International Soccer) Wednesday at 6:00 pm on ESPN.
Things are looking up!
Mission Accomplished
Completely different staff and a very non confrontational X-ray tech.
They are also printing out my Radiologist report so I'll have that in hand also. They are making the CD and printing the report as we speak........
Now its all in my hand.
Partial Results
Now, I'm in between appointments and sitting in the Mercy parking lot. I have to walk in this place and let them know that I went against what they said and looked at the CD. Then I have to ask for more. Not looking forward to this and I'm not leaving without what I came for.
Good Start Today
There should be some sort of update today regarding the CT scan. I sent the CD to a more than qualified unnamed third party and it will arrive today for review.
The CD contained 30 CT images of my abdominal area, chest, and pelvic region. The program it was written on is a digital light box program that is compatible with Microsoft Windows. When your curser is on any spot of the image, it shows the density and depth of that point. Pretty cool but no comprendo.
Time to make a sale now.